Fragile X Syndrome (16)

See Also:
Sites:

http://www.fpg.unc.edu/~fx/
Carolina Fragile X Project Open in a new browser window
   A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
   http://www.fpg.unc.edu/~fx/
http://www.conquerfragilex.org
Conquer Fragile X, Inc. Open in a new browser window
   Creating a virtual research center in Israel to find a cure.
   http://www.conquerfragilex.org
http://www.fraxa.org/
FRAXA Research Foundation Home Page Open in a new browser window
   Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
   http://www.fraxa.org/
http://hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee72744a256744000645a3?OpenDocument
Fact Sheets for Health Professionals: Fragile X Syndrome Open in a new browser window
   From the Victorian Government, Australia.
   http://hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee72744a256744000645a3?OpenDocument
http://www.fragilex.org.au/
Fragile X Association of Australia Open in a new browser window
   Information on this disease, medical aspects, education, references, contacts and what's new in Australia
   http://www.fragilex.org.au/
http://www.fraxsocal.org
Fragile X Association of Southern California Open in a new browser window
   Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
   http://www.fraxsocal.org
http://www.ich.ucl.ac.uk/cmgs/frax98.htm
Fragile X Fact's Page Open in a new browser window
   Describing Fragile X Syndrome.
   http://www.ich.ucl.ac.uk/cmgs/frax98.htm
http://www.fragile-x.ca/
Fragile X Research Foundation of Canada Open in a new browser window
   Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
   http://www.fragile-x.ca/
http://home.coqui.net/myrna/fragile.htm
Fragile X Syndrome Open in a new browser window
   Single page on recognition of the condition in young children.
   http://home.coqui.net/myrna/fragile.htm
http://www.faseb.org/genetics/acmg/pol-16.htm
Fragile X Syndrome - Diagnostic and Carrier Testing Open in a new browser window
   A Policy Statement from the American College of Medical Genetics.
   http://www.faseb.org/genetics/acmg/pol-16.htm
http://fragilex.ca
Living with Fragile X Open in a new browser window
   One family's account of raising 3 children with Fragile X.
   http://fragilex.ca
http://www.mdfragilex.org/
Maryland Fragile X Resource Group Open in a new browser window
   A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
   http://www.mdfragilex.org/
http://groups.yahoo.com/group/fragilex/
Online Support Group Open in a new browser window
   Support group for Family's who are dealing with Fragile X Syndrome.
   http://groups.yahoo.com/group/fragilex/
http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp
Pediatric Oncal Open in a new browser window
   Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
   http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp
http://cwpp.slq.qld.gov.au/qldfragilex/
Queensland Fragile X Association Open in a new browser window
   About QFXA, news, events, links and contacts. Also information of fragile X syndrome.
   http://cwpp.slq.qld.gov.au/qldfragilex/
http://www.fragilex.org/
The National Fragile X Foundation Open in a new browser window
   Features information about the disease, its teatment, and inheritance.
   http://www.fragilex.org/

Last Updated: 2004-12-18 14:03:27